The Role of the Personal Health Record in the EHR

Appendix A: Attributes of the PHR

Attribute The PHR Is... The PHR Is Not...
Ownership
  • Owned by the individual or designee
  • Owned by any third party
Function
  • Aids the transition from paper to electronic record keeping
  • Allows individuals to refill prescriptions electronically
  • Addresses the major issues of health literacy skills (reading and writing) in the context of culture and language
  • The language and user-interface com-ponent are easy to use and understand
  • Allows selective retrieval and formatting of information by individuals or agents and can present custom-tailored views of the same information
  • Allows individuals to share information with providers and others
  • Portable (remains with the individual)
  • Helps individual organize personal health information
  • Educates the individual about personal health information
  • Helps the individual with decision making and health management, including wellness, reminders of health activities, health risk assessments, public health and patient safety alerts, and self-care plans consistent with hospital discharge summary information
  • Flexible and expandable to support evolving health needs of individual and family
  • A complete prescription or pharmacy management system
Format and Content
  • A dynamic record (continuously updated)
  • Electronic is the standard format
  • Multimedia (including paper documents)
  • Linked with, or contains copies of, provider's legal or electronic records
  • Original source of information is identifiable
  • Immediate source of information is identifiable
  • All information includes dates of entry and occurrence
  • Contains lifelong health information including:
    • Medical and clinical information from all providers (EHRs)
    • Personal identification and information
    • Genetic information
    • Personal, family, occupational, and environmental history
    • Plans and goals affecting future health
    • Health status of individual, including information about nutrition, exercise, assessment and risk data, and physiologic and biochemical parameter tracking
    • Documentation of consumer's desires relative to treatment and other health decisions such as organ donation, durable power of attorney, and advance directives
    • Charges paid by individual for services and products
    • Provider directory
    • Data dictionary that defines what will be collected, explains the purpose of each data element, provides clear and concise data definitions, sets acceptable value or value ranges, and states when and who will enter the data and how it will be authenticated
    • Health insurance information
  • Considered a complete record at any one point in time
  • Restricted by any one format (e.g., paper or electronic), although the standard format will not be paper-based
  • A replacement for the legal record or EHR of a provider
  • Restricted by culture or language
  • Providers are required or responsible for contributing information
  • Providers are required to use the information for clinical decision support or health management of the individual
Privacy Access and Control
  • Private and secure
  • Controlled by the individual
  • Accessible any place and time by individual
  • Emergency access available
  • Individual has primary responsibility for the information
  • Controlled by any third party
  • Tied to insurance companies, employ-ers, or third-party payers who may have conflicting agendas
  • Located with the provider
Maintenance and Security
  • Has an audit trail showing what infor-mation was viewed, by whom, and when
  • Is amendable (data can be changed or deleted) only by original source as a means of maintaining record integrity
  • Individual decides what is incorporated into his or her record
  • A record where data can be edited or deleted by anyone
Interoperability
  • Achieves easy, accurate, and consistent exchange with others by using communication and health vocabulary standards
  • Standards-driven to support evolving health information technology
  • Supports structured data collection from individuals and stores information using a defined vocabulary
  • Links to supportive educational, management, productivity, and quality knowledge bases
  • Tethered to or operable with only one system

Article citation:
AHIMA e-HIM Personal Health Record Work Group. "The Role of the Personal Health Record in the EHR. Appendix A: Attributes of the PHR" Journal of AHIMA 76, no.7 (July-August 2005): web extra.